Many people in the world suffer from many disorders. Some genetic, some not. A disorder that is seem to be called rare is Prader-Willi Syndrome or PWS. Even though 1 out of every 12,000 to 15,000 people in the world suffer from this disorder, it seems to be one of the most common condition seen in genetics clinics. It can cause poor muscle tone, low levels of sex hormones and a constant feeling of hunger. The part of the brain that controls feelings of fullness or hunger does not work properly in people with PWS, which leads to overeating and obesity.
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| Max showing the love he has for Lon. |
In a video we watched on Thursday (yesterday), we watched a young, 13-year-old boy, Max Seidlitz, suffer from Prader-Willi Syndrome. The video was extraordinary touching and it made me extremely sad. Max constantly kept repeating that he was hungry or wanted food. It he wouldn't get what he would ask for, he would break down into a big tantrum. It touched my heart knowing that at least he has someone Lon there to help him through everything. When Max told Lon he loved him and always will, it made me want to cry; tearas and all.
Just like any other disorder, there isn't normal behavior most of the time. It's cruel, disrespectful, sad and pathetic for ANYBODY to laugh about it. How would you feel if that was you? What if you couldn't help yourself because of a disorder? Would you laugh about it? No. That's the worst thing someone can do, and it's the worst feeling to have knowing people think it's funny.
When I heard that at school, the people in Max's class threw food on the ground to watch him dive after it to make a joke out of the whole situation made me extremely angry. It makes me wish that I was there at the time that happend. I guarantee it wouldn't be a joke anymore!
If I were to meet Max Seidlitz one day, even though I would have sympathy and a heart for him, I would not show it because I feel that it would make things worse for him. Having sympathy for somebody usually turns a person down and become sad and depressed. I want to prevent that. Though he is suffering, I want him to make the best of everyday he has. I would help him enjoy himself the way he is- flaws and all. After all, there isn't nothing much to do with somebody who has a genetic disorder. You just have to be there for them and make live enjoyable to live without the thought of being brought down by anyone. Max is a unique kid and that's the only thing that matters. He is a blessing for anybody to have.
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